For those taking epilepsy medication, side effects can have a real impact on daily life. Tania has written this post to explain how she dealt with her epilepsy medication side effects, in the hope of helping others…
For those taking epilepsy medication, side effects can have a real impact on daily life…
Tania has written this post to explain how she dealt with her epilepsy medication side effects, in the hope of helping others.
I was unfortunately passed from one neurologist to another, each one saying my case was too hard. In 2011, we moved to Australia and at the beginning of 2016 decided to return to our families in Cape Town, as we both needed support.
I have now found a fantastic neurologist here and recently have had surgery, my right frontal lobe was removed as after lots of monitoring and testing this was thought the best option for me.
I started blogging with the hope that I could be of help to others and share in others’ experiences as others have shared in mine…
I think taking anti-epileptic medication is a big topic for anyone with epilepsy – as I’m writing this, I can feel my medication kicking in and making me feel so tired and demotivated.
The big question is how to handle these side effects?
I’ve been having these side effects for years. I’ve had one neurologist that put me on 3000mg of one of the pills I take and it made me into a horrible wife, mother and friend – the temper rages I had were awful.
The feeling of hopelessness about having epilepsy was horrid – always tell yourself there is hope at the end of the tunnel. I have found with the right team there is hope and right now I see the light…
How to deal with epilepsy medication side effects
• Talk to your neurologist who can adjust some of your medication safely
• NEVER stop taking your medication without your doctor’s advice
• Explain to friends and family that you are taking a higher amount of medication than normal
• Have a friend to talk to and vent to
• When your body tells you to sleep, please sleep
• Go to bed early
• This is a hard one, but get out there and exercise. A long walk with your dog or friend, go to the beach and watch the waves – this is calming
•Drink lots of water to flush your system and keep it clean, keep your kidneys clean
• Don’t drive when you feel awful – you might have had your license taken away already (this is a hard one to accept)
• Join support groups, it’s so important to talk to the right people
• If you have children, try and explain to them what’s happening to you and why
• Alcohol can affect your medication, try and avoid it when possible
• Make contact with people on Social Media (Twitter, Facebook, etc.) who can help you – I have found Twitter very helpful
Always remember there are others out there battling epilepsy – it’s not an easy thing to deal with and accept.
Whilst none of this is medical advice because I am not a doctor and cannot help medically…
This is all taken from my life and what I have experienced.